Patient Journey Sarcoidosis

Why?

Features of new Fact Sheets

There are lots of contents on different web pages of different levels of quality, sometimes also with videos. And I really appreciate the advocacy of Athol Wells for the partnership between doctor and patient [6] - Sarcoidosis UK did a good job, I like that interview format!

First Symptoms

Diagnosis

Treatment

Care Program?

Literature

1. What is Sarcoidosis (ATS Facts Sheets, Part I, 2018. Here the old version from 2006.) and
2. Treatment of Sarcoidosis (ATS Facts Sheets, Part II, 2018)
3. FSR Patient Toolkit (FSR, 2019)
4. Leaflets (Sarcoidosis UK, 2017-2018)
5. Diagnose: Sarcoïdose,... en nu? (Sarcoidosis NL, 2019)
6. Playlist Patient Information Videos (SarcoidosisUK, 2019)
7. Wikipedia: Sarcoidosis (2019)
8. Websites on Sarkoidosis with medical background (2000 - 2019)
9. Sarcoidosis (ELF Fact Sheets, 2013)
10. Sarcoidosis: an orphan disease needs to be adopted (2019)
11. Some list of articels on Sarcoidosis (2019)
12. Consequences of Sarcoidosis (2015)
13. Sarcoidosis: patient treatment priorities (2018)

further:
• ACSI - English folder (2015)
• Understanding Sarcoidosis: A Visual Guide for Students vom Youtube Channel Zero to Finals (2019)

(Last change: 2019-12-31)